Eyal Cohen (moderator), Adam Kirton (moderator), Patrick Berrigan, Wendy Ungar, Jennifer Zwicker, Nora Fayed, Rick Watts, Maryna Yaskina, Tanya Voth, Lawrence Richer, Jan Willem Gorter, Andrea Cross, Donna Thomson, Julia Orkin, Aryeh Gitterman, Connie Putterman, Pierre Zwiegers, Josée Della Rocca, Valerie Frost, and Michael Shevell
Location: Rose-Fuchsia Room (map)
CHILD-BRIGHT members are developing expertise and resources for their project that could be useful for your project. One of the main benefits of working in a network is the opportunity to share this expertise and these resources across the network, so that the network becomes greater than the sum of its parts.
This is a one hour session at which members can learn about a resource or a strategy developed by a peer that could be integrated in a future research project.
Format:
Round-table discussions. 11 tables, 1 topic and 8-10 spaces per table, including the subject matter expert. Over the course of the hour, participants will join 2 tables (for 30 minutes each).
Objective:
The objective of this session is for network members to learn about 2 resources or strategies developed by a CHILD-BRIGHT peer that could be integrated in a future research project.
Topics include:
Table 1: Measuring health and non-health resource use and costs for economic evaluation (Patrick Berrigan, Wendy Ungar, and Jennifer Zwicker).
Table objectives:
- Understand the importance of collecting data on resource use and costs
- Share and exchange practical information on resource use and cost data collection.
Table 2: Optimizing patient-reported outcome and experience measures for clinicians and patient stakeholders (Nora Fayed).
Table objectives:
- Develop an understanding of a patient-reported outcome measure (PROM) and a patient-reported experience measure (PREM)
- Discuss how to choose an appropriate PROM or PREM
- Discuss the consequences of choosing an inappropriate PROM/PREM and feasible alternatives.
Table 3: How the Data Coordinating Centre can help you (Rick Watts and Maryna Yaskina).
Table objectives:
- Learn tips on becoming savvy with REDCap
- Learn about data management and quality
- Ask questions about statistical methods.
Table 4: Secondary Data Use (Tanya Voth and Lawrence Richer).
Table objectives:
- Learn what funders (CIHR) and publishers are expecting
- Learn about the challenges and opportunities associated with secondary data use
- Learn how the DCC will support CHILD-BRIGHT with secondary data use
- Learn about the benefits of thinking about how secondary data use can benefit the network moving forward.
Table 5: Engaging the public in research on Twitter: practical pointers (Jan Willem Gorter, a.k.a the Transition Doctor @Dr_Gorter).
Table objectives:
- Explore the benefits and risks of using Twitter
- Learn how to engage the public on Twitter (Twitter 101)
- Practice using the conference hashtag and twitter chat (bring your device!)
Table 6: Family engagement in research in the digital age: Exploring how family-researcher partnerships are fostered through online Facebook groups (Andrea Cross and Donna Thomson).
Table objectives:
- Introduce and share lessons learned from the Parents Partnering in Research (PPR) and Strongest Families Facebook Groups
- Describe the Codes of Conduct and its role in supporting a safe community for knowledge sharing and exchange
- Provide examples of how these Facebook groups have been used to facilitate introductions between parents and researchers and foster meaningful engagement throughout the research process.
Table 7: Collaboration and Co-design: Family Advisory Groups for Research and Clinical Care (Julia Orkin).
Table objectives:
- Learn how to establish a parent advisory group for research and clinical purposes
- To understand the principles of co-design methodology through case discussion
- To explore examples of outputs from a family advisory and how the co-design model can improve productivity.
Table 8: Using CHILD-BRIGHT’s iKT Tracking Tool to document and improve engagement strategies (Aryeh Gitterman and Connie Putterman).
Table objectives:
- Learn about the objectives of integrated knowledge translation (iKT) as it applies to CHILD-BRIGHT
- Learn how to use the iKT tool to monitor and improve your KT activities.
Table 9: Resources available through CHILD-BRIGHT’s Training Program (Pierre Zwiegers).
Table objectives:
- Learn about the Training Program’s ongoing outputs
- Learn about the Training Program’s new initiatives that are in development
- Provide your input to the Training Program about gaps in POR training.
Table 10: How to keep donors and foundations engaged in research: Perspectives from foundation representatives (Josée Della Rocca and Valerie Frost).
Table objectives:
- Learn how to determine what your donors are looking for
- Review sample content from effective impact reports.
Table 11: Fundraising for your research: How to develop and strengthen relationships with foundations (Michael Shevell).
Table objectives:
- Learn how to initiate, maintain, and strengthen relationships with foundations
- Learn how to align your priorities of donors and researchers.