Curious about how our pan-Canadian network is structured and governed? Here is a detailed breakdown.
Our work is made possible thanks to a five-year grant by the Canadian Institutes of Health Research (CIHR) under Canada's Strategy for Patient-Oriented Research (SPOR), and the generous contributions of 27 funding partners.
Network Steering Committee
The Network Steering Committee (NSC), in conjunction with the Executive Committee, has the highest level decision-making authority in the CHILD-BRIGHT Network. The NSC oversees and manages the network.
The Executive Committee is in place to make time-sensitive decisions as necessary between NSC meetings.
Data Safety Monitoring Board (DSMB)
CHILD-BRIGHT’s centralized Data Safety Monitoring Board (DSMB) is composed of a group of clinical research experts from Canada and around the world. The DSMB meets at set times throughout the year to monitor the safety of trials that are deemed to pose moderate to high risk.
International Scientific Advisory Committee
The International Scientific Advisory Committee (I-SAC), which is composed of experts in patient-oriented strategies in chronic childhood disabilities, provides advice to the NSC on establishing priorities and executing a nation-wide agenda on patient-oriented research based on successful models from other countries.
Citizen Engagement Council
The Citizen Engagement Council (CEC) provides guidance to the NSC on optimizing patient engagement activities so as to inform research development in areas of value to patients.
Four program teams come together to accomplish CHILD-BRIGHT's mandate. Learn more about each by visiting their pages.
Our Health Economics team evaluates the cost-effectiveness and cost-utility of emerging technologies, interventions, treatments and services for a wide range of pediatric neurodevelopmental disorders. We provide expertise on choosing valid outcome measures for resource use and quality of life and assist with customization for particular studies. We work closely with each project team and the Data Coordinating Centre to enable and promote the conduct of high quality economic evaluations alongside relevant projects.
Data Coordinating Centre
The Data Coordinating Centre (DCC) helps CHILD-BRIGHT research projects develop secure, reliable and rigorous systems to collect, analyze and report study data. We ensure that research data is collected in an appropriate manner, kept private and secure, and used to maximum effect.
Citizen Engagement and Patient Representation
Patients and families are at the heart of everything we do and have a leadership role in almost all of our committees (see diagram for details). Would you like to join us and contribute to our success, on one of our committee or in some other capacity?