The CHILD-BRIGHT Network, headquartered at the Research Institute of the McGill University Health Centre (RI-MUHC), is an innovative pan-Canadian network that aims to improve life outcomes for children with brain-based developmental disabilities and their families. Using family and child-focused approaches, we work to create novel interventions to optimize development, promote health outcomes, and deliver responsive and supportive services. Co-directed by investigators at the BC Children’s Hospital and The Hospital for Sick Children (SickKids), CHILD-BRIGHT is made possible thanks to a five-year grant by the Canadian Institutes of Health Research (CIHR) under Canada’s Strategy for Patient-Oriented Research (SPOR), and 28 generous funding partners from public and private sectors across Canada.
Our Target Population
The CHILD-BRIGHT Network works to make the future brighter for infants, children, and youth with lifelong brain-based developmental disabilities and their families, including individuals with a diagnosis of a brain-based disorder (e.g. autism spectrum disorder, attention deficit hyperactivity disorder, fetal alcohol spectrum disorder, cerebral palsy, intellectual or learning disabilities), and individuals at high risk for a brain-based disorder (e.g. preterm birth, congenital heart disease, genetic anomaly).
We will create meaningful partnerships with patients, parents and policy makers in order to prioritize and develop innovative and timely interventions and services that will transform outcomes and change the lives of children with brain-based developmental disabilities and their families.
We will put in place the infrastructure for a learning community through research, training, and knowledge translation activities.
We will shape our patient-oriented research agenda and knowledge mobilization efforts by meaningfully engaging key stakeholders while paying careful attention to seek the voices of those who may experience greater health care needs due to socio-demographic factors, or those whose voices are insufficiently heard.
Our pan-Canadian research network will study new diagnostic tests, therapies, and technologies to optimize the health of Canadian children born with brain-based disorders as well as the well-being of their caregivers and families. Read more...
Knowledge Translation Program
Our team of experts will develop methods to better engage stakeholders in research development, and identify the optimal strategies to communicate research findings, and implement clinical and systems changes in health care delivery and community-based services. Read more...
Through the design of courses, workshops, and seminars, our training team will engage with multiple stakeholder groups to foster a culture of patient-oriented research leading to a new generation of researchers who collaborate with the patient population; patients who effectively engage with researchers and petition for policy change; and policy makers who are not only more attuned to patient and family health care needs, but are kept informed with novel research outcomes that can drive the necessary policy changes. Read more...
Citizen Engagement Platform
Our network aims to engage all people touched by brain-based developmental disabilities, especially patients and families, as meaningfully as possible in all aspects of our work. Read more...