Contact Us

Reach out! We love getting to know you and receiving questions, comments and input related to our research mandate, the impact of our work, and ways in which you can get involved! 

We would like to make sure you are aware, however, that as a patient-oriented research network, we do not have the expertise nor the resources needed to connect families with local community services or programs. We also do not provide opinions, or comment, on medical treatments. We are happy, however, to provide a short list of organizations or associations that may be better equipped to help you with this in our Resources section.


Our Head Office

5252 Boul. de Maisonneuve Ouest
Montréal (Quebec) 
H4A 3S5