CHILD-BRIGHT Pain Pathway: A hybrid implementation-effectiveness study of a clinical pathway to manage pain and irritability of unknown origin in children with severe neurological impairments
Contact
Anne-Mette Hermansen (BCCHR): aharmansen@bcchr.ca
Principal Investigators
Hal Siden (BCCHR, University of British Columbia, Canuck Place Children’s Hospice)
Stephanie Glegg (BCCHR, University of British Columbia)
Early career researcher:
Sharon Hou (Simon Fraser University, BCCHR)
Project summary
Many children with brain-based developmental disorders, specifically those with severe neurological impairments, experience ongoing pain and irritability of unknown origin (PIUO) which is difficult to treat and these children typically cannot tell us ‘where it hurts.’ The Pain Pathway is a clinical pathway that was developed by the team to manage PIUO for children with severe neurological impairments. In Phase 1, we tested the usefulness of the Pain Pathway with families and expert clinicians in pediatric hospitals across Canada. In Phase 2, we are studying whether this tool can be used in a community context by general pediatricians. Our goal is to create a systematic, cohesive approach to enhance the clinical care for all children with complex medical needs experiencing PIUO.
Research theme: BRIGHT Realities – Projects to effectively bring interventions into the lives of children and their families
Audience: Children with severe neurological impairments (SNI) experiencing PIUO and their families.
Phase 1 study: Optimizing the Management of Pain and Irritability in Children with Severe Neurological Impairment (PIUO)
Project updates
2023-24
The CHILD-BRIGHT Pain Pathway team has received research ethics approval for their study. The team has started data collection. The team has prepared a study protocol that is under review for publication.
In the news: The CPOI Podcast | Episode 3 - Hal Siden and Manhoor Faisal
Follow our work
Study website: www.paindetectives.org
Members on social media: @laesafaith | @sharonhjhou