Are you wondering why it might be worthwhile for you or your child to take part in a patient-oriented research study? In our “What’s My Why” blog series, hear from five CHILD-BRIGHT patient-partners on the many reasons they decided to get involved in research.
In this post, Parent Partner Fabiana Bacchini shares her “why”.
When my son was in the neonatal intensive care unit (NICU), we signed up for two research studies. Back then, my only hope was to help him during his NICU stay. After his discharge, I started volunteering in the NICU and I was invited to collaborate in a few research projects, sitting side-by-side with clinicians. My perspective totally changed as I started to understand the importance of research to provide children with evidence-based care and treatments.
I'm grateful to all the families who participated in research before me. Today, I get involved in research as a collaborator as a way to give back to this community and I continue to enrol my son in research studies to support families who will come after us.