What is a ‘patient’ for CHILD-BRIGHT?
A child with a brain-based developmental disability is considered a ‘patient’ at CHILD-BRIGHT but because many patients are either too young or do not have the cognitive or language abilities to engage as members of the research team, parents or close family members who can represent the patient experience are also considered ‘patients’ within our network.
Chairman (Mackay Centre School) & Parent Commissioner, Advisory Committee for Special Education Services (English Montreal School Board
Founder, Three to Be
Founder, the Canadian Family Advisory Network (CFAN)
& active member of several Boards
Director, Westcoast Connection Travel Camp
CHILD-BRIGHT Communications Manager
A parent participating in research as well as an advocate for childhood disability
CPA, CA & parent of an adult with a rare disorder