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More than Medical: Supporting NICU Families with their Transition Home During a Pandemic

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This webinar is now over but if you missed it, please feel free to watch the recordings below

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Leaving the NICU is often a challenging time for families and can make them feel both excitement and fear in equal measure.  In our Coached, Coordinated, Enhanced Neonatal Transition (CCENT) study, we have been looking at models for supporting and empowering families through this stressful transition.  What we’re learning seems even more important in light of the added stress brought by COVID-19.  In this webinar, a neonatologist/developmental paediatrician, a nurse navigator, and a graduate NICU parent will share some reflections from the past few months, and what we think NICU parents need from us now as they prepare for life at home during the pandemic.

Provided by the CHILD-BRIGHT Network in collaboration with Children’s Healthcare Canada.

When: Tuesday, September 29, 2020
Time: Noon - 1:00 p.m. EST


LEARNING OBJECTIVES

Participants will be able to:

  1. Identify challenges generally experienced by NICU families during and after their transition home

  2. Understand how COVID-19 has exacerbated these challenges and created new ones for NICU families, and

  3. Describe how supportive and holistic care models (such as our Acceptance Commitment Training approach) can help families address the emotional and practical issues they’re facing, and empower them with personal problem-solving strategies.

PRESENTERS

Dr. Paige T. Church (Neonatologist and CCENT Investigator at Sunnybrook)

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Dr. Church is a graduate of the University of Vermont College of Medicine.  Her paediatrics training was completed at the University of Chicago, focusing on inner city medicine and complex care. She then undertook a combined fellowship in Neonatal-Perinatal Medicine and Developmental Behavioral Paediatrics at Tufts University School of Medicine in Boston.

Dr. Church is currently an Associate Professor in the Department of Paediatrics at the University of Toronto.  She is on staff at Sunnybrook Health Sciences Centre as a staff neonatologist and is a consulting developmental behavioral pediatrician at Bloorview Kids Rehab.  She is the director of the Neonatal Follow Up Clinic at Sunnybrook Health Sciences Centre.  She is also the co-Principal Investigator of the CHILD-BRIGHT Network Coached, Coordinated, Enhanced Neonatal Transition (CCENT) study.

Kate Robson (CCENT Parent-Partner Lead)

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Kate is the Parent Partner Lead at the Coached, Coordinated, Enhanced Neonatal Transition (CCENT) research project. Both of Kate’s daughters were born preterm - one was a 500 gram 25 weeker born in 2005, and the other came at 32 weeks in 2007.  Inspired by her own experiences, she came back to the NICU in 2010 to work with families as a Neonatal Intensive Care Unit Family Support Specialist. She also has a private therapy practice in Toronto where she offers support to NICU parents and clinicians. 

Amie Nowak (CCENT Nurse Navigator in BC)

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Amie has lived in BC her entire life, and started working at the BC Children's Hospital  (BCCH) early in her nursing career. She has been the pediatric general surgery nurse specializing in ostomies and wounds since 2006. She stumbled into research and is loving interacting with families in a whole new way, and supporting them as they transition home. In her spare time, she enjoys hanging out with her husband and kids, walking her dog, and stopping her cats from destroying everything green in her house.