Welcome to our Tools & Resources section. This page features materials developed by our members. These tools were designed to support patient-oriented research and knowledge mobilization in brain-based neurodevelopmental disability research.
Resources for families of children and youth with disabilities
Created by the CHILD-BRIGHT Network Family Hub
View
Transitioning from pediatric to adult health care for youth with special health care needs: Resource list for health professionals, youth and families
Created by the CHILD-BRIGHT Network Clinician Hub and Family Hub
View: Lay Summary | Word (Accessible)
The Jooay application
Created by the CHILD-BRIGHT Network Jooay project
View
Genomic results e-booklet
Created by Julia Handra, Isabel Jordan, Brenda Lenahan, Kelsey Ohs, Colleen Guimond, Patricia Birch, and the Friedman Lab
View
Compensation and recognition guidelines for partners with lived and living experience
Created by the CHILD-BRIGHT Network
View
The Child Community Health Inclusion Index (CHILD-CHII) framework
View
Evidence-informed knowledge mobilization methods for patients, parents, and the public
View (by KM Strategy) | View (by Intended Outcome) | Let’s Talk KM Info Session (recording)
Evidence-informed knowledge translation methods for healthcare professionals
View (by intended Outcome)
Knowledge translation activity formulation and tracking tool
View Tracking Tool
