Welcome to our Tools & Resources section. This page features materials developed by our members. These tools were designed to support patient-oriented research and knowledge mobilization in brain-based neurodevelopmental disability research.

 

Resources for families of children and youth with disabilities
Created by the CHILD-BRIGHT Network Family Hub
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Transitioning from pediatric to adult health care for youth with special health care needs: Resource list for health professionals, youth and families 
Created by the CHILD-BRIGHT Network Clinician Hub and Family Hub
View: Lay Summary | Word (Accessible)

The Jooay application
Created by the CHILD-BRIGHT Network Jooay project
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Genomic results e-booklet
Created by Julia Handra, Isabel Jordan, Brenda Lenahan, Kelsey Ohs, Colleen Guimond, Patricia Birch, and the Friedman Lab
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Compensation and recognition guidelines for partners with lived and living experience
Created by the CHILD-BRIGHT Network
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The Child Community Health Inclusion Index (CHILD-CHII) framework
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Evidence-informed knowledge mobilization methods for patients, parents, and the public
View (by KM Strategy) | View (by Intended Outcome) | Let’s Talk KM Info Session (recording)

Evidence-informed knowledge translation methods for healthcare professionals
View (by intended Outcome)

Knowledge translation activity formulation and tracking tool
View Tracking Tool