• Guiding Family Engagement in Research: A Framework from Holland Bloorview Kids Rehabilitation Hospital: Provides an overview of a framework to support authentic and meaningful partnerships among families, staff, and researchers to advance childhood disability research centered around inclusion, transparency, mutual respect, family leadership, and collaboration. 

• McCain Model for Youth Engagement: The article discusses the development and success of a Youth-Adult Partnership (Y-AP) initiative at the McCain Centre at the Centre for Addiction and Mental Health (CAMH). The McCain Y-AP model integrates youth into mental health and substance use initiatives, allowing for flexible involvement, mentorship, and authentic decision-making. 

• Patient Engagement Toolkit: Offers a collection of tips, outlines roles for engagement, and provides practical tools for teams to improve research process, skills, and engagement, especially with PWLEs. 

• Patient and Family Engagement in Research: A Guide For Researchers: This Engagement Toolkit allows researchers to select from a list of options that relate to their study, and see examples and benefits of doing POR. They can also complete an engagement readiness assessment tool in this toolkit. 

• Student Project Tools for Family Engagement in Research: Connects you to other resources centred around knowledge translation and dissemination, as well as tools and guidelines for becoming a PWLE in research, knowledge dissemination, establishing partnerships, and the ethics behind youth and family engagement in research. 

• Stories of Pediatric Rehabilitation Practitioners with/in Indigenous Communities: This guide is about exploring Cultural Safety in paediatric rehabilitation services with and within non-urban Indigenous communities in Canada. 

• 2022 CHILD-BRIGHT Patient-Oriented Research Discussions (PODs): Explore a series of POR discussions centred around practical tools and training resources, integrating patient perspectives, knowledge translation practices, and equitable compensation in POR. 

• 2022 CHILD-BRIGHT Learning Series: This learning series covers topics related to trauma-informed practice in medical research and enhancing engagement through the use of social media in POR. 

• 2021 CHILD-BRIGHT Learning Series: This webinar explores the importance of diversity, accessibility, and accommodation considerations in POR with youth. 

• 2019 CHILD-BRIGHT Summer Learning Series: This learning series covers topics related to best practices for collaboration, enhancing participation, and prioritizing reciprocity in research. 

• 2018 CHILD-BRIGHT Summer Learning Series: This learning series covers topics related to incorporating patient engagement in a research project, exploring barriers, drivers and benefits of public participation in research, and an overview of CHILD-BRIGHT’s POR. 

• 2020 CHILD-BRIGHT Summer Learning Series Webinars: This learning series covers topics related to ethics when engaging patient partners in research and finding the best ways to ensure that patient engagement is meaningful and authentic. 

• Patient Engagement in Research Rounds (PEIRR) Webinar: PEIRR - Webinar One: Meaningful Patient Engagement in the Context of Paediatric Pain Research: A webinar on the topic of patient engagement in the context of paediatric research

Matters of Engagement: A series of podcasts on patient engagement and how people in Canada access and experience health care service delivery and distribution; how those experiences impact both individual and community health; and the multitude of environmental, systemic, and political factors that favour some and disadvantage many. 

• Student Projects - CanChild Family Engagement in Research  KT Tools: The purpose of the KT tools developed by students is to disseminate knowledge and information on patient and family engagement in childhood neurodevelopmental research. Examples of KT tools include infographics, webinars, podcasts, or any other means of sharing information. We encourage you to download and use these KT tools to support your engagement in research! 

• Project Engage: This Highlights an equity-based approach to research that fosters participatory and visual methods that can encourage the participation of populations that are often excluded from more traditional research designs. 

Can-SOLVE CKD: Knowledge Keepers in Research:A resource to create a culturally safe space for researchers, PWLEs and Knowledge Keepers to come together. It will encourage researchers to honour various forms of knowledge alongside Indigenous Knowledge Keepers and help them translate those teachings into practice. 

BC SUPPORT Unit: Evidence-Informed Practices and Strategies for Patient-Oriented Research (POR): A ‘Menu’ for Research Teams: To support research teams considering or moving into Patient-Oriented Research (POR) by offering a ‘menu’ of evidence-informed practices and strategies for effective engagement. 

• Race, ethnicity, and socioeconomic status in research on child health: This article examines existing research on disparities in child health, development, and access to health care across different racial, ethnic, and socioeconomic groups. 

• Co-designing simulations and analyzing the process to ascertain principles of authentic and meaningful research engagement in childhood disability research: This study focused on creating simulation training videos to enhance authentic and meaningful engagement between researchers, youth with disabilities, and their families in childhood disability research. 

• Patient-Oriented Research Curriculum in Child Health (PORCCH): PORCCH offers a series of interactive, online modules designed to help teach individuals about POR in child health and improve the relevance of quality of child health research. Topics explored include key concepts in health research, understanding research timelines, effective patient engagement, and research ethics. 

• Patient-Oriented Research Training and Learning: PORTL-PHC is a self-directed, online training program comprised of four modules that explore patient priorities and engagement in health care, methods for meaningful patient engagement, skill building and applications of POR. 

• The Family Engagement in Research (FER) Course: The FER Course is a 10-week online course that covers principles and frameworks of family engagement in research. Patients, family partners, and researchers are placed in groups and required to create knowledge translation tool highlighting best practices in FER. 

• Alberta SUPPORT Unit: Developing Capacity in Patient-Oriented Research: In line with CIHR’s Capacity Development Framework, AbSPORU offers diverse, responsive and integrated training opportunities designed to create a culture of learning and collaboration within Alberta’s health system and research communities. Our training environment includes a suite of eLearning modules, certificate courses, graduate studentships, an annual conference, and more. 

• San’yas Anti-Racism Indigenous Cultural Safety Training Program: Our online training courses have been carefully designed for different types of learners, in different locations across Canada. We have partnered with leaders in Ontario, Manitoba, and British Columbia to develop province- and sector-specific Core Training courses. We have also developed Core Training for learners in any sector, as well as Advanced Training that is national in scope. To date, we have trained over 200,000 learners, including people who work in finance, education, government, business, not-for-profits, health care, mental health, justice, child welfare, and research. 

• University of Alberta Indigenous Canada Coursera: Indigenous Canada is a 12-lesson Massive Open Online Course (MOOC) from the Faculty of Native Studies that explores the different histories and contemporary perspectives of Indigenous peoples living in Canada. From an Indigenous perspective, this course explores complex experiences Indigenous peoples face today from a historical and critical perspective highlighting national and local Indigenous-settler relations. Topics for the 12 lessons include the fur trade and other exchange relationships, land claims and environmental impacts, legal systems and rights, political conflicts and alliances, Indigenous political activism, and contemporary Indigenous life, art and its expressions. 

• Learning Together: The use of simulation to enhance and enable authentic and meaningful research partnerships