The Knowledge Translation (KT) program, led by Dr. Keiko Shikako-Thomas, Dr. Jonathan Weiss, and Connie Putterman (parent lead), will develop strategies and research methodology to effectively translate the results of our research findings to families, to health care professionals, and to society at large. We will develop methods to better engage key stakeholders in research development, and identify the optimal strategies to communicate research findings, and implement clinical and systems changes in health care delivery and community-based services.
What does that mean?
The concept of knowledge translation is often understood as an “End-of-Grant” KT approach, referring to the dissemination of findings generated from a research project. However, knowledge Translation is actually an umbrella term for two broad categories, End-of-Grant KT and Integrated KT (iKT) (see diagrams below). iKT requires that stakeholders be members of the research team and engage in many stages of the research process.
We will focus on an iKT approach because it engages people (families, patients with disabilities, other scientists, clinicians, government agencies and foundations who fund research) from the beginning of the research process.
iKT empowers the public to help shape the research agenda and helps us identify the best engagement strategies to advance how we involve people in the entire research process: from identifying the important research questions, to helping the development of the project, and interpreting, applying, and disseminating results.
We want to better understand how we can make iKT work, the science behind iKT, and the strategies that result in meaningful engagement of individuals in research activities. We also want to implement the results of CHILD-BRIGHT’s research findings to improve the lives of families, the practice of health care professionals, and the awareness of brain-based disabilities in society at large.
How we're going to do it
Activities are planned to facilitate exchange and promote uptake of existing and new knowledge relevant to children with brain-based disabilities and their families, and other stakeholders such as health providers, professionals in education, and policy makers.
What you can expect…
We are using our unique position in a pan-Canadian, multi-project, patient-oriented research network to expand on the science of integrated knowledge translation (iKT) through research projects. These research projects will investigate the way we conduct patient-oriented research and how we engage our stakeholders across the network. We want to share our lessons learnt and identified best practices with other groups interested in undertaking iKT.
Webinars are interactive presentations over the Internet to a remote audience. CHILD-BRIGHT webinars are broadcasted on the Canadian Association of Paediatric Health Centers CAPHC Presents! Platform. Live broadcasts allows us to present emerging topics in real-time and answer your questions directly via live chat. Webinars can also be accessed on-demand on the CAPHC Presents! website.
An opportunity to discuss preliminary research directions and challenges, and subsequently, to disseminate information about existing evidence in thematic areas that have poor uptake, potential for immediate uptake, or are innovative and meaningful for the public at large. (Coming soon!)
Typically in the form of a short document that presents the findings and recommendations of a research project to a non-specialized audience. (Coming soon!)
What we're up to...
Identify and address knowledge gaps in stakeholder engagement and iKT science
- Rapid review on stakeholder engagement measures as an indicator for successful integrated knowledge translation
Evaluating the level of stakeholder engagement in CHILD-BRIGHT research projects
- Monitoring the progression and evolution of knowledge translation interventions
- Determine reach and knowledge use among stakeholders throughout all CHILD-BRIGHT dissemination and implementation activities
A policy response unit, a “Policy Hub”
To identify key policy makers, the potential policy impact of projects, and conduct policy analysis and mapping in the areas identified.
A social network analysis
For continuous evaluation of reach and spread of the network.