The 2020 CHILD-BRIGHT Virtual Symposium was a series of 4 virtual sessions that showcased innovative work focused on childhood brain-based developmental disabilities. During each session, 10-minute presentations from speakers were followed by a 5-minute question period. Recordings of each presentation are archived below.
Family centered early motor intervention in children with severe congenital heart disease
Presenter: Elena Mitteregger
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Creating and Evaluating a Parent Co-Developed Resource for Genomic Testing Results
Presenter: Julia Handra
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Optimizing the Management of Pain and Irritability in Children with Severe Neurological Impairments: a Qualitative Study
Presenter: Sara Rizakos
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Go Far, Go Together: A Journey of Collaboration with Youth and Families for the READYorNot Brain-Based Disabilities TrialPresenter: Linda Nguyen
Co-presenters: Kinga Pozniak (parent partner and postdoctoral fellow) and Kyle Chambers (youth partner)
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BRIGHT Coaching: A developmental coach system to empower families of preschoolers with suspected developmental delays
Presenter: Annette Majnemer
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Sibling Engagement in Research: An Illustrative Example of a Sibling-Researcher Partnership To Design a Study
Presenter: Linda Nguyen
Co-presenters: Hanae Davis (PhD Candidate and sibling partner) and Samantha Bellefeuille (sibling partner)
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Prenatal Opioid Exposure and Neonatal Abstinence Syndrome: A Research Project with Indigenous Peoples in Ontario First Nations
Presenter: Serene Kerpan
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Changing Your Lens: A Focus on Parents of Medically Complex Children
Presenter: Teresa MacMillan
Co-Presenters: Lillian Kitcher and Amelie DesLauriers
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Supporting parent-partners in the CHILD-BRIGHT Patient-Oriented Research (SPOR) Network through a Parent Peer Mentor
Presenter: Carrie Costello
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Parent Integrated Evidence-based Practice to Improve Quality (“Parent-EPIQ”): Meaningful outcomes for parents of very preterm children
Presenter: Lindsay Richter
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Neuropsychological profile of patients with Snijders Blok-Campeau syndrome caused by mutations in the Chromodomain Helicase DNA-binding 3 gene
Presenter: Anca Ionescu
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Patient engagement in the development and implementation of an online coaching intervention for parents of children with suspected development delays: Strategies and perceived benefits
Presenter: Tatiana Ogourtsova
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Regional thalamic dysrhythmia and connectivity abnormalities relate to motor performance in children with perinatal stroke
Presenter: Anton Rogachov
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Youth insights in the co-development of novel video and virtual reality game-based interventions
Presenter: Jennifer Crosbie, on behalf of Victoria Lishak
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Coaches’ fidelity in delivering a novel coaching intervention for parents of children with suspected developmental delay
Presenter: Tatiana Ogourtsova
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Ready 2 Work: Development of an Online Employment Platform for People with Autism
Presenter: Jean Phan
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