Network Steering Committee

The Network Steering Committee (NSC), which includes the Executive Committee, has the highest-level decision-making authority in the CHILD-BRIGHT Network. The NSC oversees and manages the network.

Executive Committee

The Executive Committee is in place to make time-sensitive decisions as necessary between NSC meetings, and to provide leadership to the NSC.

INTERNATIONAL ADVISORY COMMITTEE

The International Advisory Committee will capitalize on national and international expertise external to the network in the areas of knowledge mobilization and implementation science, as well as in equity, diversity, inclusion, decolonization and Indigenization. It will include broad representation of people from within our ecosystem.

legacy and SUSTAINABILITY taskforce

The Legacy and Sustainability Taskforce will maintain collaborative relationships with funding partners and establish mechanisms to sustain the gains of the network beyond the period covered by the Phase 2 grant.

Engagement Council: partners with lived and living experience

The Engagement Council: Partners with Lived and Living Experience (EC: PWLE), composed of youth (aged 14 to 29) living with brain-based developmental disabilities (BDD), parents of children with BDD, and other knowledge users, provides guidance on embedding individuals with lived and living experience in all network projects and activities to ensure their authentic engagement.

NATIONAL YOUTH ADVocacy council

Composed of youth with lived and living experience of brain-based developmental disabilities, the National Youth Advocacy Council (NYAC) offers guidance on ways to initiate, improve, and sustain engagement within the network.

IMPLEMENTATION SCIENCE RESEARCH COMMITTEE

The Implementation Science (IS) Research Committee works with IS Research Program co-leads to inform project teams’ development of their research and to monitor their progress.

TRAINING & CAPACITY BUILDING COMMITTEE

The Training & Capacity Building (T&CB) Committee provides guidance on how to apply learnings relating to knowledge mobilization, implementation science, and equity, diversity, inclusion, decolonization and Indigenization to patient-oriented research projects.

KNOWLEDGE MOBILIZATION COMMITTEE

The Knowledge Mobilization (KM) Committee provides KM consultation and mentoring support to project teams and engages in KM activities that fall within the purview of the KM Program.

EQUITY, DIVERSITY, INCLUSION, DECOLONIZATION AND INDIGENIZATION (EDI-DI) COMMITTEE

The EDI-DI Committee guides the network in the integration of CHILD-BRIGHT's EDI-DI framework in network activities.

Health Economics

Our Health Economics team evaluates the cost-effectiveness and cost-utility of emerging technologies, interventions, treatments, and services for a wide range of pediatric neurodevelopmental disorders. We provide expertise on choosing valid outcome measures for resource use and quality of life and assist with customization for particular studies. We work closely with each project team and the Data Coordinating Centre to enable and promote the conduct of high quality economic evaluations alongside relevant projects.

Data Coordinating Centre

The Data Coordinating Centre (DCC) helps CHILD-BRIGHT research projects develop secure, reliable, and rigorous systems to collect, analyze, and report study data. We ensure that research data is collected in an appropriate manner, kept private and secure, and used to maximum effect.