Research Contact
Alan Cooper
Research Coordinator
416-813-1500 ext. 207855 | Email

The CHILD-BRIGHT Network is composed of clinicians, patients, families, and scientists who are committed to improving outcomes for children born with brain-based developmental disabilities through research. Together, CHILD-BRIGHT’s pan-Canadian research program, led by Dr. Steven Miller, will study new diagnostic tests, therapies, service models, and technologies to optimize the physical and mental health of Canadian children born with brain-based disorders as well as the well-being of their caregivers and families. CHILD-BRIGHT’S 12 patient-oriented research projects fall under three themes:

BRIGHT Beginnings

Early intervention is key in minimizing developmental problems that children may face. Over the past decade, experimental studies have identified fetal, neonatal, and early childhood rehabilitation practices that optimize brain and developmental outcomes. CHILD-BRIGHT’s five research projects under the BRIGHT Beginnings theme will focus on bringing these experimental advances to human clinical studies to minimize brain injury and restore brain function. Knowing how these therapies influence brain development will allow our team to identify the most effective practices that will promote resilience, improve the child’s physical and mental health, and enhance overall well-being. Our five projects are:

 

BRIGHT Supports

The BRIGHT Supports theme will transform outcomes by integrating mental health support into the care of children and youth with brain-based developmental disabilities who experience behavioural difficulties. Novel information technologies as well as medical interventions will be evaluated in children with a wide range of developmental disabilities. Health promotion strategies that foster fitness and social participation will also be developed. The four BRIGHT Supports projects will also fill a critical gap by offering family-centred ‘help-giving’ practices to support parents in their role as caregiver. Our four projects are:

 

BRIGHT Futures

Under the BRIGHT Futures theme, we will redesign key parts of the health care system to be more responsive to the needs of families as their children develop. We will focus on key transition periods: discharge from the neonatal intensive care unit, the transition from preschool to school, and the transition into the adult health care system. Our intent is to produce policy-relevant, cost-effective innovations that will transform real-world service delivery to patients and families throughout their growth trajectories. This transformation will both improve children’s physical and mental health, and empower their families. Our three projects are:


Our work would not be possible without the support of these teams!

Data Coordinating Centre (DCC) We ensure that the research data is collected in an appropriate manner, kept private and secure, and used to maximum effect. Learn more...

Data Coordinating Centre (DCC)
We ensure that the research data is collected in an appropriate manner, kept private and secure, and used to maximum effect. Learn more...

Health Economics We evaluate the cost-effectiveness and cost-utility of emerging technologies, interventions, treatments and services for a wide range of pediatric neurodevelopmental disorders. We provide expertise on choosing valid outcome measures for resource use and quality of life and assist with customization for particular studies. We work closely with each project team and the DCC to enable and promote the conduct of high quality economic evaluations alongside relevant projects. Learn more by watching this TEDxYorkUSalon Talk given by CHILD-BRIGHT's Wendy Ungar

Health Economics
We evaluate the cost-effectiveness and cost-utility of emerging technologies, interventions, treatments and services for a wide range of pediatric neurodevelopmental disorders. We provide expertise on choosing valid outcome measures for resource use and quality of life and assist with customization for particular studies. We work closely with each project team and the DCC to enable and promote the conduct of high quality economic evaluations alongside relevant projects.
Learn more by watching this TEDxYorkUSalon Talk given by CHILD-BRIGHT's Wendy Ungar


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