The CHILD-BRIGHT Network is looking for a…
Parent Advisory Representative | Research Project | Multiple locations
Number of positions to fill: 4
Intended for: A parent or caregiver
Description of role:
We are seeking parent representatives for a parent advisory group to help develop a research project. This research project will focus on the needs of children 3-6 years old and their families. We are looking for 2-3 representatives for each of our provincial study centres (BC, NS, ON, QC). Parent representatives will help build a geographically and socially diverse network of parents in their province, and will represent their interests and concerns to the Parent Advisory Committee.
For: BRIGHT Coaching: A Developmental Coach System to Empower Families of Preschoolers
Responsible to: Bahar Kasaai and Bill McKellin
Works with: Annette Majnemer
The responsibilities of the representative will be:
- To meet monthly with researchers, in person or virtually,
- To provide advice on different aspects of the research study such as recruitment, questionnaires, study tools, and other research procedures on an ongoing basis.
- To help build and maintain contact with a socially diverse group of parents with children with brain-based conditions in their province,
- To provide advice about publications.
Engagement details and expected time commitment:
We are looking to engage interested individuals as soon as possible, ideally for the duration of the 3-4 year study. Your participation is expected to include about 2 hours per month.
Yes, according to current CHILD-BRIGHT compensation guidelines
We are seeking parent advisors, who:
- Ideally reside in a remote or rural area in British Columbia, Quebec, Nova Scotia or Manitoba.
- Bilingualism (English and French speaking); an asset for Quebec residents.
- Have a young child (ideally, under the age of 12) with a suspected or diagnosed developmental delay that affects their child's development (e.g. Autism, FASD, global developmental delay).
- Their own child's health and health care should be stable (i.e. one-year post diagnosis or other major medical treatments).
- Have experience dealing with health, educational, and social services on behalf of their child in their province.
- Have access to, and are comfortable with using computer programs, such as Skype or FaceTime.
- Demonstrate interest in research studies and/or child health. To be empathetic, and to have a reasonable, wide-scope perspective towards the project and system.
Specific skills or experience that could be an asset: