The CHILD-BRIGHT Network is looking for a…
Committee Member | Data Coordinating Centre Core Committee
Number of positions to fill: 2
Intended for: A parent, caregiver or former parent
Introduction to the DCC:
The CHILD-BRIGHT Data Coordinating Centre (DCC) helps the CHILD-BRIGHT research projects to develop secure, reliable and rigorous systems to collect, analyze and report study data.
The DCC ensures that the research data contributed by patients, parents and families is collected in an appropriate manner, kept private and secure, and used to maximum effect. The DCC is located at the Women and Children’s Health Research Institute, University of Alberta in Edmonton.
Description of role:
As part of the DCC Core Committee, you will be tasked with developing and endorsing an annual work plan. In addition, the committee will provide direction and endorsement for topics related to:
- Data standardization within the network
- Data integration and sharing within the network
- Data use and facilitation of data sharing outside the network
- Longer term data archiving and storage
Responsible to: Tanya Voth and Dr. Lawrence Richer
Works with: Data Coordinating Centre
Engagement details and expected time commitment:
We are looking to engage interested individuals by September 1st 2017 for at least one year. Your participation is expected to include at least 4 committee meetings a year for approximately 1-2 hours each. In addition, 1-4 hours of in-house orientation prior to the first meeting will be provided to learn about the DCC and REDCap (Research Electronic Data Capture software) and the way it services the CHILD-BRIGHT Network.
Yes, according to current CHILD-BRIGHT compensation guidelines
We are looking for parents, caregivers, or even older patients, who might be interested in data access and sharing to support brain based disability research.
Preference is given to applicants in the Edmonton area for face-to-face meeting opportunities, but applicants can be engaged remotely.
Specific skills or experience that could be an asset:
- Data analysis
- Research methodology
- Child and Youth assessment instruments
- Any experience with research (e.g. participation in a study)