Join us in Toronto on August 13th to learn more about patient-oriented research.
In this session, we will explore Module 1 of CIHR's Foundational Skills in Patient-Oriented Research curriculum, which introduces the concept of patient engagement in the research process. The session is open to all CHILD-BRIGHT stakeholders, so we encourage any local patient-partners, investigators, and trainees to contribute to the ongoing discussion.
When: Monday, August 13
Time: 8:30 AM to 5:00 PM
Location: The Hospital for Sick Children
(Peter Gilgan Centre for Research and Learning, 686 Bay St., Event Rooms 2A and 2B
A light breakfast, lunch and refreshments will be offered.
For a general overview of the session, please consult the outline.
(Final details will be relayed to you approximately one-week prior to the session)
By the end of this module, participants should be able to:
- Define patient-oriented research and describe how it is different from more traditional health research
- Articulate why it is beneficial to involve patients in health research
- Describe the various roles that patients can meaningfully and actively play in health research, including governance, priority setting, peer review and other committee work, and the conduct of research itself
- Identify the kinds of roles that they are interested in
- Identify future learning needs related to those roles
- Assess the unique strengths that patients may bring, not only as patients but through their other personal, educational and professional experiences
- Describe the spectrum of participation as outlined by the International Association of Public Participation (IAP2)
- Describe the guiding principles that underpin patient engagement in health research: inclusiveness, support, mutual respect and co-building
- Describe examples of ways patients have been involved in patient-oriented research
- Outline the practical considerations for engaging patients as partners in health research (e.g. compensation, incentives and rewards that are meaningful to the participant, culturally and socially safe environments)
- Compare patient-reported outcome measures and patient-reported experience measures with measures traditionally used in health research
- Appreciate the value of personal stories and how they contribute to a better understanding of the needs, values and preferences of patient.