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TORONTO SESSION: Module 1 - CIHR Patient-Oriented Research Curriculum

  • Peter Gilgan Centre for Research and Learning 686 Bay Street Toronto, ON, M5G 0A4 Canada (map)

Join us in Toronto on August 13th to learn more about patient-oriented research. 

In this session, we will explore Module 1 of CIHR's Foundational Skills in Patient-Oriented Research curriculum, which introduces the concept of patient engagement in the research process. The session is open to all CHILD-BRIGHT stakeholders, so we encourage any local patient-partners, investigators, and trainees to contribute to the ongoing discussion.

When: Monday, August 13
Time: 8:30 AM to 5:00 PM
Location: The Hospital for Sick Children
(Peter Gilgan Centre for Research and Learning, 686 Bay St., Event Rooms 2A and 2B

A light breakfast, lunch and refreshments will be offered.

For a general overview of the session, please consult the outline.

    (Final details will be relayed to you approximately one-week prior to the session)

    Learning Outcomes:
    By the end of this module, participants should be able to:

    1. Define patient-oriented research and describe how it is different from more traditional health research
    2. Articulate why it is beneficial to involve patients in health research 
    3. Describe the various roles that patients can meaningfully and actively play in health research, including governance, priority setting, peer review and other committee work, and the conduct of research itself
    4. Identify the kinds of roles that they are interested in 
    5. Identify future learning needs related to those roles 
    6. Assess the unique strengths that patients may bring, not only as patients but through their other personal, educational and professional experiences
    7. Describe the spectrum of participation as outlined by the International Association of Public Participation (IAP2)
    8. Describe the guiding principles that underpin patient engagement in health research: inclusiveness, support, mutual respect and co-building
    9. Describe examples of ways patients have been involved in patient-oriented research
    10. Outline the practical considerations for engaging patients as partners in health research (e.g. compensation, incentives and rewards that are meaningful to the participant, culturally and socially safe environments)
    11. Compare patient-reported outcome measures and patient-reported experience measures with measures traditionally used in health research
    12. Appreciate the value of personal stories and how they contribute to a better understanding of the needs, values and preferences of patient.

    Please relay any inquiries to