CHILD-BRIGHT & Canada’s Strategy for Patient-Oriented Research
Jun
7
1:30 PM13:30

CHILD-BRIGHT & Canada’s Strategy for Patient-Oriented Research

As part of our 2018 Summer Learning Series, CHILD-BRIGHT’s Training program is hosting several free webinars that are open to anyone with an interest in learning more about Patient-Oriented Research (POR).

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Join us for the first of these sessions:

When: Thursday, June 7, 2018

Time: 10:30-11:30am PST / 1:30-2:30 EST

Knowledge generated  through health research rarely makes the leap from bench to bedside. Canada’s Strategy for Patient-Oriented Research (SPOR) is an initiative that hopes to address this discrepancy.

In this session, we will be exploring:

  • How Canada’s SPOR is planning to improve health research so that it leads to high-quality & cost-effective care

  • How CHILD-BRIGHT fits within the larger scope of Canada’s SPOR.

Space is limited, so we ask that you RSVP here by May 31st, 2018. Your attendance and all requisite details will be confirmed by June 1st.

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CAPHC Presents! The Coach Approach: Supporting Families of Children with Disabilities
Jun
20
11:00 AM11:00

CAPHC Presents! The Coach Approach: Supporting Families of Children with Disabilities

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Join us for this webinar, highlighting our work, hosted by CAPHC, as part of their CAPHC Presents! series.

Wednesday, June 20
11-12pm EDT

A coach or navigator approach is a new model that is now increasingly used in pediatric health care contexts. This webinar will provide an overview of what a coach is and the current evidence that exists in the use of a coach for parents of children with disabilities. Three research projects funded by CHILD-BRIGHT that use a coach model at three transition points in a child’s development will also be highlighted.

Speakers:
Maureen O'Donnell
Tatiana Ogourtsova
Annette Majnemer
Eyal Cohen

Tatiana Ogourtsova PhD, MSc, BSc OT (c), erg
Tatiana Ogourtsova is a Postdoctoral Fellow at the University of British Columbia (UBC), Department of Medicine, Pediatrics, mentored collaboratively by Dr. Maureen O’Donnell (UBC) and Dr. Annette Majnemer (McGill University) in the CHILD-BRIGHT’s Strategy for Patient Oriented Research. Tatiana is an Occupational Therapist, with several years of clinical experience at the McGill University Health Center – acute care (MUHC, Montreal, PQ). She completed her MSc and PhD in Rehabilitation Sciences at McGill University (Montreal, PQ) in the field of neurorehabilitation and knowledge translation.

Annette Majnemer  PhD, OT, FCAHS
Annette Majnemer is an occupational therapist with doctoral training in the neurosciences. She is a Professor at the School of Physical & Occupational Therapy  (SPOT) at McGill University, with cross appointments in the Departments of Neurology & Neurosurgery and Pediatrics. She is currently Vice Dean – Education for the Faculty of Medicine, McGill University, and is a Senior Scientist at the Research Institute of the McGill University Health Centre where she leads the CHILD-BRIGHT national SPOR Network. 

Eyal Cohen, MD, MSc, FRCP(C)
Dr. Eyal Cohen trained in pediatrics at the Hospital for Sick Children and Children's Hospital at Westmead in Sydney, Australia, completed an MSc in health research methodology at McMaster University in 2008.  Dr. Cohen co-founded the Complex Care Program in the Division of Pediatric Medicine at The Hospital for Sick Children where he is an Associate Scientist in the Research Institute.  He is an Associate Professor of Pediatrics at the University of Toronto with cross-appointments in the Institute of Health Policy, Management and Evaluation.  He is also a Scientist with the CanChild Centre for Childhood Disability Research at McMaster University.

Maureen O'Donnell MD MSc FRCPC
Dr. Maureen O'Donnell is the Executive Director of Child Health BC. A sub-specialist in Developmental Pediatrics, she has served as UBC Division Head, and has held provincial, national and international leadership roles related to her field. She holds a Master’s degree in clinical epidemiology and is an Associate Professor in the UBC Department of Pediatrics.  She served as Special Advisor to BC’s Deputy Minister of Health on CYSN for almost 5 years. Child Health BC is a network bringing together health system planners, administrators, policy makers and professional organizations from across BC and is an initiative of BC Children's Hospital.  

 

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Exploring  Some of the Barriers, Drivers, & Benefits of Public Participation in Research
Jul
5
10:30 AM10:30

Exploring Some of the Barriers, Drivers, & Benefits of Public Participation in Research

As part of our 2018 Summer Learning Series, CHILD-BRIGHT’s Training program is hosting several free webinars that are open to anyone with an interest in learning more about Patient-Oriented Research (POR).

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Join us for the second of these sessions:

When: Thursday, July 5, 2018

Time: 10:30-11:30am PST / 1:30-2:30 EST

In this session, we will explore:

  • What authentic patient engagement looks like

  • Some of the factors that influence patient engagement in the research process

  • How patient engagement can positively impact the outcome(s) of health research.

Space is limited, so we ask that you RSVP here by June 28th, 2018. Your attendance and all requisite details will be confirmed by June 29th.

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How  is Patient Engagement Incorporated into a Research Project?
Jul
26
10:30 AM10:30

How is Patient Engagement Incorporated into a Research Project?

As part of our 2018 Summer Learning Series, CHILD-BRIGHT’s Training program is hosting several free webinars that are open to anyone with an interest in learning more about Patient-Oriented Research (POR).

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Join us for the third of these sessions:

When: Thursday, July 26, 2018

Time: 10:30-11:30am PST / 1:30-2:30 EST

Building on the momentum of the previous two sessions, it is time to consider the practical aspects of patient engagement in the research process.  

In this session, we will explore:

  • How researchers can move beyond involving patients as research subjects, but as research partners

  • The different opportunities for patient engagement throughout each stage of the research. 

Space is limited, so we ask that you RSVP here by July 19th, 2018. Your attendance and all requisite details will be confirmed by July 20th.

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Patient  Engagement in Action: A Case Study in Patient-Oriented Research
Aug
9
10:30 AM10:30

Patient Engagement in Action: A Case Study in Patient-Oriented Research

As part of our 2018 Summer Learning Series, CHILD-BRIGHT’s Training program is hosting several free webinars that are open to anyone with an interest in learning more about Patient-Oriented Research (POR).

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Join us for the fourth of these sessions:

When: Thursday, Aug. 9, 2018

Time: 10:30-11:30am PST / 1:30-2:30 EST

In this session we will showcase a current research project that exhibits authentic patient engagement. Through exploring their journey, we will get a sense of how the process of patient engagement evolved throughout the process and how certain challenges were addressed.

Details will be finalized and registrants will be updated with any specifics.

Space is limited, so we ask that you RSVP here by July 19th, 2018. Your attendance and all requisite details will be confirmed by July 20th.

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Update on the CIHR SPOR CHILD-BRIGHT Network
Mar
9
3:00 PM15:00

Update on the CIHR SPOR CHILD-BRIGHT Network

This event has now passed, but you can view a recording of this webinar here: 


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Event hosted by the BC SUPPORT Unit

March 9, 2018

Noon to 1 p.m. (PST) / 3 to 4 p.m. (EST)

Join us for an update on the CHILD-BRIGHT Network. As one of Canada’s SPOR networks in chronic diseases, CHILD-BRIGHT aims to improve life outcomes for children with brain-based developmental disabilities and their families. During this webinar, hosted by the BC SUPPORT Unit, speakers Daniel Goldowitz, CHILD-BRIGHT Network Co-Director, and Pierre Zwiegers, CHILD-BRIGHT Training Coordinator, will present an overview of the network and its ongoing activities.

FREE ADMISSION

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Jooay App: Promoting Participation of Children with Disabilities
Feb
22
12:30 PM12:30

Jooay App: Promoting Participation of Children with Disabilities

Seminar hosted by ComSanté, Centre de recherche sur la communication et la santé

Participation in sports and leisure activities is an important component of child development, but engagement of children with disabilities remains limited compared to children of the same age. Families and health professionals indicated that access to information on available resources is an essential factor facilitating participation. Families further expressed that a strong social support system improves children's participation in leisure. It is in this context that two researchers from McGill University created Jooay, a free mobile and web-based application offering a repository of adapted or inclusive leisure activities for children with disabilities available across Canada. Jooay is also an online support community allowing the exchange of advice and experiences. The research activities of this project are aimed at (1) mapping the patterns of Behavior Change among Jooay users; (2) identifying the best strategies for disseminating information about adapted leisure and (3) implementing and evaluating methods to optimize the use of this technology. The information gathered through the mobile application will also be used to inform policy and community change. 

 

Date : February 22nd 2018, from 12:30 PM to 1:45 PM
Speakers : Annette Majnemer, professor, McGill University; Keiko Shikako-Thomas, assistant professor, McGill University.
Building : UQAM's Pavillon Saint-Denis (AB), Montreal
Room: AB-7015

 

Free activity, but your registration is required.

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BRAINstorm: CHILD-BRIGHT KT's Innovation Incubator Event and Grant Competition 2017
Nov
6
2:30 PM14:30

BRAINstorm: CHILD-BRIGHT KT's Innovation Incubator Event and Grant Competition 2017

Through this highly interactive workshop, participants will begin by defining a shared understanding of integrated knowledge translation. Participants will then discover what it means to “innovate”, and how innovations can be applied to knowledge translation science. Through creative brainstorming techniques and by building partnerships with other participants, attendees will have the opportunity to generate and expand on innovative knowledge translation projects ideas. As an example, an open-mic style period will allow participants to share their project ideas – no matter how daring, outrageous, creative or out-of-the-box they might be. The session will conclude with concrete actions to further conceptualize the ideas discussed, and will encourage partners to participate in the Innovation Incubator funding competition to help bring a unique, innovative integrated Knowledge Translation (iKT) project to life.

 
 
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CAPHC Presents!: Introducing BRAINstorm: CHILD-BRIGHT KT's Innovation Incubator Event and Grant Competition 2017
Sep
6
11:00 AM11:00

CAPHC Presents!: Introducing BRAINstorm: CHILD-BRIGHT KT's Innovation Incubator Event and Grant Competition 2017

Description

The CHILD-BRIGHT’s Knowledge Translation Co-chair team will present an overview of their Knowledge Translation Innovation Incubator workshop and grant competition titled “BRAINstorm” that will take place on November 6th, 2017 in Toronto. This workshop is part of the Brain-Child-Partners conference 2017, a joint event with Kids Brain Health Network. From this presentation, participants should come to appreciate:

  • Why we need innovation in Knowledge Translation
  • What innovation means in Knowledge Translation
  • Why YOU should participate in this BRAINstorm event
  • How can YOU find the right partners and develop an idea to participate in the innovative Knowledge Translation project competition
  • The unique format, lineup of great presenters and thought provoking activities you will experience during the workshop.

Speakers
Dr. Keiko Shikako-Thomas
Connie Putterman
Dr. Jonathan Weiss

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CAPHC Presents!: Introducing CHILD-BRIGHT: Get involved in our patient-oriented research network
Jun
28
11:00 AM11:00

CAPHC Presents!: Introducing CHILD-BRIGHT: Get involved in our patient-oriented research network

Get to know CHILD-BRIGHT, an innovative pan-Canadian network that aims to improve life outcomes for children with brain-based developmental disabilities and their families.

Join Dr. Annette Majnemer, along with Dr. Steven Miller, Dr. Dan Goldowitz, Frank Gavin and Dr. Keiko Shikako-Thomas as they share an overview of the network and how it is currently supported by patient-oriented research, patient-oriented training, citizen engagement and knowledge translation programs.

From this presentation, participants should come to appreciate:

 
  • How our research aims to improve child health and development, enhance patient/family experience, and develop cost-effective strategies.
  • How patients, families, researchers, clinicians, policy makers, and other key stakeholders are working together to (1) create novel interventions to optimize development, (2) identify better ways to deliver responsive and supportive services, and (3) improve systems, knowledge, and practices to ensure better outcomes for these children and their families
  • How CAPHC’s international community of child and youth health care practitioners, patients, families, researchers and other stakeholders can impact our decisions, activities and events.

Speakers:
Dr. Annette Majnemer
Dr. Steven Miller
Dr. Dan Goldowitz
Frank Gavin
Dr. Keiko Shikako-Thomas

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