CAPHC Presents! A Tale of Research & Clinical Collaboration: The SPORT Trial
Sep
12
11:00 AM11:00

CAPHC Presents! A Tale of Research & Clinical Collaboration: The SPORT Trial

This webinar is now over, but if you missed it, please feel free to watch the recording below.


Sept 12 CAPHC Presents SPORT.png

Integration of research and clinical care is highly valued but is often difficult to achieve within the realities of a busy children’s hospital. A model for how this can be achieved is provided by the SPORT trial, a CHILD-BRIGHT multicenter study of non-invasive brain stimulation paired with intensive therapy for children with perinatal stroke and cerebral palsy. With presenters including a clinical therapist, post-doctoral fellow, and clinician scientist, the rationale, methods and early outcomes of this trial will be presented as an example of how such integration might succeed within Canadian pediatric centers.

When: Wednesday, September 12
Time: 11:00am-12:00pm EST 

Speakers:
Alicia Hilderley PhD
Megan Metzler OT
Adam Kirton MD

Adam Kirton MD MSc FRCPC
Dr. Kirton is Professor of Pediatrics, Radiology, and Clinical Neurosciences at the University of Calgary and an attending Pediatric Neurologist at the Alberta Children’s Hospital. His research focuses on applying technologies including non-invasive brain stimulation and neuroimaging to measure and modulate the response of the developing brain to early injury to generate new therapies. He is a clinician scientist and CIHR Foundation Grant Recipient. Dr. Kirton directs the Calgary Pediatric Stroke Program, Alberta Perinatal Stroke Project, ACH Pediatric Non-Invasive Brain Stimulation Laboratory and University of Calgary Noninvasive Neurostimulation Network (N3).

Alicia Hilderley PhD
Alicia is a postdoctoral research fellow with the Calgary Pediatric Stroke Program at the University of Calgary and Alberta Children’s Hospital, working with Dr. Adam Kirton. Her research interests include design and evaluation of pediatric movement interventions, and use of neuroimaging to investigate neural function, structure, and plasticity. Alicia’s doctoral training in Rehabilitation Sciences at the University of Toronto focused on motor learning and neuroplasticity in children with cerebral palsy. She is a Registered Kinesiologist (inactive status) and is actively involved in coaching community adapted sports.

Megan Metzler BScOT MSc
Megan Metzler is an occupational therapist research clinician at the Alberta Children’s Hospital. The role involves promoting integration of clinical best practices, treating children clinically, and supporting ongoing research trials. Her research interests include the efficacy of intensive motor therapies in combination with novel technology after perinatal stroke and the role of therapy for visual deficits arising from neurological injury.

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MONTREAL SESSION: Module 1 - CIHR Patient-Oriented Research Curriculum
Aug
15
8:30 AM08:30

MONTREAL SESSION: Module 1 - CIHR Patient-Oriented Research Curriculum

Join us in Montreal on August 15th to learn about patient-oriented research. 

In this session, we will deliver Module 1 of CIHR's Foundational Skills in Patient-Oriented Research curriculum, which introduces the concept of patient engagement in the research process. The session is open to all CHILD-BRIGHT stakeholders, so we encourage any local patient-partners, investigators, and trainees to contribute to the ongoing discussion.

When: Wednesday, August 15
Time: 8:30 AM to 5:00 PM
Location: McGill
(D-20, 3654 Prom Sir-William-Osler, Montréal, Québec H3G 1Y5)

A light breakfast, lunch and refreshments will be offered

For a general overview of the session, please consult the outline.

Final details (including venue information) will be relayed to you approximately one-week prior to the session


Learning Outcomes:
By the end of this module, participants should be able to:

  1. Define patient-oriented research and describe how it is different from more traditional health research
  2. Articulate why it is beneficial to involve patients in health research 
  3. Describe the various roles that patients can meaningfully and actively play in health research, including governance, priority setting, peer review and other committee work, and the conduct of research itself
  4. Identify the kinds of roles that they are interested in 
  5. Identify future learning needs related to those roles 
  6. Assess the unique strengths that patients may bring, not only as patients but through their other personal, educational and professional experiences
  7. Describe the spectrum of participation as outlined by the International Association of Public Participation (IAP2)
  8. Describe the guiding principles that underpin patient engagement in health research: inclusiveness, support, mutual respect and co-building 
  9. Describe examples of ways patients have been involved in patient-oriented research
  10. Outline the practical considerations for engaging patients as partners in health research (e.g. compensation, incentives and rewards that are meaningful to the participant, culturally and socially safe environments)
  11. Compare patient-reported outcome measures and patient-reported experience measures with measures traditionally used in health research
  12. Appreciate the value of personal stories and how they contribute to a better understanding of the needs, values and preferences of patient.

Please relay any inquiries to pierre.zwiegers@child-bright.ca.

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TORONTO SESSION: Module 1 - CIHR Patient-Oriented Research Curriculum
Aug
13
8:30 AM08:30

TORONTO SESSION: Module 1 - CIHR Patient-Oriented Research Curriculum

  • Peter Gilgan Centre for Research and Learning (map)
  • Google Calendar ICS

Join us in Toronto on August 13th to learn more about patient-oriented research. 

In this session, we will explore Module 1 of CIHR's Foundational Skills in Patient-Oriented Research curriculum, which introduces the concept of patient engagement in the research process. The session is open to all CHILD-BRIGHT stakeholders, so we encourage any local patient-partners, investigators, and trainees to contribute to the ongoing discussion.

When: Monday, August 13
Time: 8:30 AM to 5:00 PM
Location: The Hospital for Sick Children
(Peter Gilgan Centre for Research and Learning, 686 Bay St., Event Rooms 2A and 2B

A light breakfast, lunch and refreshments will be offered.

For a general overview of the session, please consult the outline.

    (Final details will be relayed to you approximately one-week prior to the session)


    Learning Outcomes:
    By the end of this module, participants should be able to:

    1. Define patient-oriented research and describe how it is different from more traditional health research
    2. Articulate why it is beneficial to involve patients in health research 
    3. Describe the various roles that patients can meaningfully and actively play in health research, including governance, priority setting, peer review and other committee work, and the conduct of research itself
    4. Identify the kinds of roles that they are interested in 
    5. Identify future learning needs related to those roles 
    6. Assess the unique strengths that patients may bring, not only as patients but through their other personal, educational and professional experiences
    7. Describe the spectrum of participation as outlined by the International Association of Public Participation (IAP2)
    8. Describe the guiding principles that underpin patient engagement in health research: inclusiveness, support, mutual respect and co-building
    9. Describe examples of ways patients have been involved in patient-oriented research
    10. Outline the practical considerations for engaging patients as partners in health research (e.g. compensation, incentives and rewards that are meaningful to the participant, culturally and socially safe environments)
    11. Compare patient-reported outcome measures and patient-reported experience measures with measures traditionally used in health research
    12. Appreciate the value of personal stories and how they contribute to a better understanding of the needs, values and preferences of patient.

    Please relay any inquiries to pierre.zwiegers@child-bright.ca.

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    Patient  Engagement in Action: A Case Study in Patient-Oriented Research
    Aug
    9
    10:30 AM10:30

    Patient Engagement in Action: A Case Study in Patient-Oriented Research

    This webinar is now over, but if you missed it, please feel free to watch the recording below or click here to see the entire summer series. 


    As part of our 2018 Summer Learning Series, CHILD-BRIGHT’s Training program is hosting several free webinars that are open to anyone with an interest in learning more about Patient-Oriented Research (POR).

    SLS-Aug9-webinar.jpg

    Join us for the fourth of these sessions:

    When: Thursday, Aug. 9, 2018

    Time: 10:30-11:30am PST / 1:30-2:30 EST

    In this session we will showcase a current research project that values authentic patient engagement. Through exploring their journey, we will get a sense of how the process of patient engagement evolved throughout the process and how certain challenges were addressed.

    Details will be finalized and registrants will be updated with any specifics.

    Space is limited, so we ask that you RSVP here by July 19th, 2018. Your attendance and all requisite details will be confirmed by July 20th.

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    How  is Patient Engagement Incorporated into a Research Project?
    Jul
    26
    10:30 AM10:30

    How is Patient Engagement Incorporated into a Research Project?

    This webinar is now over, but if you missed it, please feel free to watch the recording below or click here to see the entire summer series. 


    As part of our 2018 Summer Learning Series, CHILD-BRIGHT’s Training program is hosting several free webinars that are open to anyone with an interest in learning more about Patient-Oriented Research (POR).

    SLS-July26-webinar.jpg

    Join us for the third of these sessions:

    When: Thursday, July 26, 2018

    Time: 10:30-11:30am PST / 1:30-2:30 EST

    Building on the momentum of the previous two sessions, it is time to consider the practical aspects of patient engagement in the research process.  

    In this session, we will explore:

    • How researchers can move beyond involving patients as research subjects, but as research partners

    • The different opportunities for patient engagement throughout each stage of the research. 

    Space is limited, so we ask that you RSVP here by July 19th, 2018. Your attendance and all requisite details will be confirmed by July 20th.

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    Exploring  Some of the Barriers, Drivers, & Benefits of Public Participation in Research
    Jul
    5
    10:30 AM10:30

    Exploring Some of the Barriers, Drivers, & Benefits of Public Participation in Research

    This webinar is now over, but if you missed it, please feel free to watch the recording below or click here to see the entire summer series. 


    As part of our 2018 Summer Learning Series, CHILD-BRIGHT’s Training program is hosting several free webinars that are open to anyone with an interest in learning more about Patient-Oriented Research (POR).

    SLS-July5-webinar.jpg

    Join us for the second of these sessions:

    When: Thursday, July 5, 2018

    Time: 10:30-11:30am PST / 1:30-2:30 EST

    In this session, we will explore:

    • What authentic patient engagement looks like

    • Some of the factors that influence patient engagement in the research process

    • How patient engagement can positively impact the outcome(s) of health research.

    Space is limited, so we ask that you RSVP here by June 28th, 2018. Your attendance and all requisite details will be confirmed by June 29th.

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    CAPHC Presents! The Coach Approach: Supporting Families of Children with Disabilities
    Jun
    20
    11:00 AM11:00

    CAPHC Presents! The Coach Approach: Supporting Families of Children with Disabilities

    June 20 Theme Call.jpg

     

    THIS WEBINAR HAS ALREADY TAKEN PLACE, BUT IF YOU MISSED IT, PLEASE FEEL FREE TO WATCH THE RECORDING BELOW.

    A coach or navigator approach is a new model that is now increasingly used in pediatric health care contexts. This webinar will provide an overview of what a coach is and the current evidence that exists in the use of a coach for parents of children with disabilities.

    Join us for this webinar, highlighting our work, hosted by CAPHC, as part of their CAPHC Presents! series.

    Wednesday, June 20
    11-12pm EDT

    A coach or navigator approach is a new model that is now increasingly used in pediatric health care contexts. This webinar will provide an overview of what a coach is and the current evidence that exists in the use of a coach for parents of children with disabilities. Three research projects funded by CHILD-BRIGHT that use a coach model at three transition points in a child’s development will also be highlighted.

    Speakers:
    Maureen O'Donnell
    Tatiana Ogourtsova
    Annette Majnemer
    Eyal Cohen

    Tatiana Ogourtsova PhD, MSc, BSc OT (c), erg
    Tatiana Ogourtsova is a Postdoctoral Fellow at the University of British Columbia (UBC), Department of Medicine, Pediatrics, mentored collaboratively by Dr. Maureen O’Donnell (UBC) and Dr. Annette Majnemer (McGill University) in the CHILD-BRIGHT’s Strategy for Patient Oriented Research. Tatiana is an Occupational Therapist, with several years of clinical experience at the McGill University Health Center – acute care (MUHC, Montreal, PQ). She completed her MSc and PhD in Rehabilitation Sciences at McGill University (Montreal, PQ) in the field of neurorehabilitation and knowledge translation.

    Annette Majnemer  PhD, OT, FCAHS
    Annette Majnemer is an occupational therapist with doctoral training in the neurosciences. She is a Professor at the School of Physical & Occupational Therapy  (SPOT) at McGill University, with cross appointments in the Departments of Neurology & Neurosurgery and Pediatrics. She is currently Vice Dean – Education for the Faculty of Medicine, McGill University, and is a Senior Scientist at the Research Institute of the McGill University Health Centre where she leads the CHILD-BRIGHT national SPOR Network. 

    Eyal Cohen, MD, MSc, FRCP(C)
    Dr. Eyal Cohen trained in pediatrics at the Hospital for Sick Children and Children's Hospital at Westmead in Sydney, Australia, completed an MSc in health research methodology at McMaster University in 2008.  Dr. Cohen co-founded the Complex Care Program in the Division of Pediatric Medicine at The Hospital for Sick Children where he is an Associate Scientist in the Research Institute.  He is an Associate Professor of Pediatrics at the University of Toronto with cross-appointments in the Institute of Health Policy, Management and Evaluation.  He is also a Scientist with the CanChild Centre for Childhood Disability Research at McMaster University.

    Maureen O'Donnell MD MSc FRCPC
    Dr. Maureen O'Donnell is the Executive Director of Child Health BC. A sub-specialist in Developmental Pediatrics, she has served as UBC Division Head, and has held provincial, national and international leadership roles related to her field. She holds a Master’s degree in clinical epidemiology and is an Associate Professor in the UBC Department of Pediatrics.  She served as Special Advisor to BC’s Deputy Minister of Health on CYSN for almost 5 years. Child Health BC is a network bringing together health system planners, administrators, policy makers and professional organizations from across BC and is an initiative of BC Children's Hospital.  

     

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    CHILD-BRIGHT & Canada’s Strategy for Patient-Oriented Research
    Jun
    7
    1:30 PM13:30

    CHILD-BRIGHT & Canada’s Strategy for Patient-Oriented Research

    This webinar is now over, but if you missed it, please feel free to watch the recording below or click here to see the entire summer series. 


    As part of our 2018 Summer Learning Series, CHILD-BRIGHT’s Training program is hosting several free webinars that are open to anyone with an interest in learning more about Patient-Oriented Research (POR).

    SLS-June7-webinar.jpg

    Join us for the first of these sessions:

    When: Thursday, June 7, 2018

    Time: 10:30-11:30am PST / 1:30-2:30 EST

    Knowledge generated  through health research rarely makes the leap from bench to bedside. Canada’s Strategy for Patient-Oriented Research (SPOR) is an initiative that hopes to address this discrepancy.

    In this session, we will be exploring:

    • How Canada’s SPOR is planning to improve health research so that it leads to high-quality & cost-effective care

    • How CHILD-BRIGHT fits within the larger scope of Canada’s SPOR.

    Space is limited, so we ask that you RSVP here by June 4th, 2018.

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    Update on the CIHR SPOR CHILD-BRIGHT Network
    Mar
    9
    3:00 PM15:00

    Update on the CIHR SPOR CHILD-BRIGHT Network

    This event has now passed, but you can view a recording of this webinar here: 


    Update on CIHR SPOR CHILD-BRIGHT Network.jpg

    Event hosted by the BC SUPPORT Unit

    March 9, 2018

    Noon to 1 p.m. (PST) / 3 to 4 p.m. (EST)

    Join us for an update on the CHILD-BRIGHT Network. As one of Canada’s SPOR networks in chronic diseases, CHILD-BRIGHT aims to improve life outcomes for children with brain-based developmental disabilities and their families. During this webinar, hosted by the BC SUPPORT Unit, speakers Daniel Goldowitz, CHILD-BRIGHT Network Co-Director, and Pierre Zwiegers, CHILD-BRIGHT Training Coordinator, will present an overview of the network and its ongoing activities.

    FREE ADMISSION

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    Jooay App: Promoting Participation of Children with Disabilities
    Feb
    22
    12:30 PM12:30

    Jooay App: Promoting Participation of Children with Disabilities

    Seminar hosted by ComSanté, Centre de recherche sur la communication et la santé

    Participation in sports and leisure activities is an important component of child development, but engagement of children with disabilities remains limited compared to children of the same age. Families and health professionals indicated that access to information on available resources is an essential factor facilitating participation. Families further expressed that a strong social support system improves children's participation in leisure. It is in this context that two researchers from McGill University created Jooay, a free mobile and web-based application offering a repository of adapted or inclusive leisure activities for children with disabilities available across Canada. Jooay is also an online support community allowing the exchange of advice and experiences. The research activities of this project are aimed at (1) mapping the patterns of Behavior Change among Jooay users; (2) identifying the best strategies for disseminating information about adapted leisure and (3) implementing and evaluating methods to optimize the use of this technology. The information gathered through the mobile application will also be used to inform policy and community change. 

     

    Date : February 22nd 2018, from 12:30 PM to 1:45 PM
    Speakers : Annette Majnemer, professor, McGill University; Keiko Shikako-Thomas, assistant professor, McGill University.
    Building : UQAM's Pavillon Saint-Denis (AB), Montreal
    Room: AB-7015

     

    Free activity, but your registration is required.

    Facebook Event

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    BRAINstorm: CHILD-BRIGHT KT's Innovation Incubator Event and Grant Competition 2017
    Nov
    6
    2:30 PM14:30

    BRAINstorm: CHILD-BRIGHT KT's Innovation Incubator Event and Grant Competition 2017

    Through this highly interactive workshop, participants will begin by defining a shared understanding of integrated knowledge translation. Participants will then discover what it means to “innovate”, and how innovations can be applied to knowledge translation science. Through creative brainstorming techniques and by building partnerships with other participants, attendees will have the opportunity to generate and expand on innovative knowledge translation projects ideas. As an example, an open-mic style period will allow participants to share their project ideas – no matter how daring, outrageous, creative or out-of-the-box they might be. The session will conclude with concrete actions to further conceptualize the ideas discussed, and will encourage partners to participate in the Innovation Incubator funding competition to help bring a unique, innovative integrated Knowledge Translation (iKT) project to life.

     
     
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    CAPHC Presents!: Introducing BRAINstorm: CHILD-BRIGHT KT's Innovation Incubator Event and Grant Competition 2017
    Sep
    6
    11:00 AM11:00

    CAPHC Presents!: Introducing BRAINstorm: CHILD-BRIGHT KT's Innovation Incubator Event and Grant Competition 2017

    Description

    The CHILD-BRIGHT’s Knowledge Translation Co-chair team will present an overview of their Knowledge Translation Innovation Incubator workshop and grant competition titled “BRAINstorm” that will take place on November 6th, 2017 in Toronto. This workshop is part of the Brain-Child-Partners conference 2017, a joint event with Kids Brain Health Network. From this presentation, participants should come to appreciate:

    • Why we need innovation in Knowledge Translation
    • What innovation means in Knowledge Translation
    • Why YOU should participate in this BRAINstorm event
    • How can YOU find the right partners and develop an idea to participate in the innovative Knowledge Translation project competition
    • The unique format, lineup of great presenters and thought provoking activities you will experience during the workshop.

    Speakers
    Dr. Keiko Shikako-Thomas
    Connie Putterman
    Dr. Jonathan Weiss

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    CAPHC Presents!: Introducing CHILD-BRIGHT: Get involved in our patient-oriented research network
    Jun
    28
    11:00 AM11:00

    CAPHC Presents!: Introducing CHILD-BRIGHT: Get involved in our patient-oriented research network

    Get to know CHILD-BRIGHT, an innovative pan-Canadian network that aims to improve life outcomes for children with brain-based developmental disabilities and their families.

    Join Dr. Annette Majnemer, along with Dr. Steven Miller, Dr. Dan Goldowitz, Frank Gavin and Dr. Keiko Shikako-Thomas as they share an overview of the network and how it is currently supported by patient-oriented research, patient-oriented training, citizen engagement and knowledge translation programs.

    From this presentation, participants should come to appreciate:

     
    • How our research aims to improve child health and development, enhance patient/family experience, and develop cost-effective strategies.
    • How patients, families, researchers, clinicians, policy makers, and other key stakeholders are working together to (1) create novel interventions to optimize development, (2) identify better ways to deliver responsive and supportive services, and (3) improve systems, knowledge, and practices to ensure better outcomes for these children and their families
    • How CAPHC’s international community of child and youth health care practitioners, patients, families, researchers and other stakeholders can impact our decisions, activities and events.

    Speakers:
    Dr. Annette Majnemer
    Dr. Steven Miller
    Dr. Dan Goldowitz
    Frank Gavin
    Dr. Keiko Shikako-Thomas

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